Sunday, February 17, 2019

Want to participate in PD research?

Much of PD research that patients and their loved ones are interested in has to do with drugs that may slow or even reverse the direction of the disease.  There are also studies about exercise and physical therapy, and even studies trying to find some commonality among people who don't have genes that predispose them to PD.  For the basics of how these studies operate, see ClinicalTrials 101.  

If you’re interested in participating in research, here are some good sources to help you find trials that are recruiting participants near you:

  • If you’re in the UK (United Kingdom), Parkinson’s UK maintains a database of trials that helps you find trials near where you live. 
  • If you live in the US, the FoxTrial Finder is a good place to start.  I’ve found them good for initial screening of trials, but their feature to notify me of new trials doesn't seem to work, so I regularly go to the following source, too.
  • The source for most of this information is the ClinicalTrials.gov database, which includes most international trials as well as US-based trials.  This article explains how to use it.



What if the Press has a story about a "breakthrough?  Where can I find more information?  

What trials are going on right now?

What if I'm only comfortable with trials without drugs?  See Observational Studies. Image from Pixabay.

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